This week in transparency news: May 18 – May 24, 2019

by Staff writer,
Posted on 5/24/2019

Transparency in clinical trials is continually changing, and to stay on top of the news, TrialAssure brings a weekly round-up of some of the key stories surrounding disclosures in clinical trials. This week’s stories are as follows:

NIHR policy on registration and disclosure of clinical trial results National Institute for Health Research

NIHR researchers introduced a new policy on clinical trial transparency. The policy aims to improve trial registration and results disclosure to ensure full transparency of clinical trials funded by the NIHR. Additionally, clinical trials—along with all other research studies—must comply with the NIHR’s data sharing requirements.

Read the full article via NIHR

Collecting patient preference information using a Clinical Data Research Network: demonstrating feasibility with idiopathic pulmonary fibrosis Dovepress

Researchers studied the feasibility of collecting patient preference information for a rare disease in a Clinical Data Research Network (CDRN). They concluded that using a network was advantageous to the study of patient preferences.

Read the abstract on Dovepress

Current Project Data Sphere list of peer-accepted publicationsProject Data Sphere

Project Data Sphere recently published a list of accepted peer publications. The list includes studies published in the New England Journal of Medicine, European Urology, Clinical Pharmacology & Therapeutics, and more.

Download the full list on Project Data Sphere

Event alert: Plain language summary workshops American Medical Writers Association

Make the most of your time at the AMWA conference by registering for a workshop. This year, attendees can participate in an intensive three-hour program and learn more about plain language summaries from industry experts.

Register for the event here

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