Transparent Thinking Blog

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CSR pilot FDA releases first clinical study report in data transparency pilot program trialassure fdaaa section 801 requirements fdaaa trials tracker

This week in transparency news: May 25 – May 31, 2019

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National Registry of Health Research (ReNIS) argentina clinical trial registration disclosure trialassure

REGISTRY SNAPSHOT: National Registry of Health Research (ReNIS)

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Should people share their DNA for drug development purposes? – USA Today Many people don’t realize that sharing a DNA sample with Ancestry.com, 23andMe and others can result in their data being shared. However, this week, the companies pledged that they would disclose when data is shared with corporations or the government. With a $300 million investment by GSK in 23andMe, they state that approximately 80 percent of customers have agreed to share their DNA data. This data is being de-identified before it is shared.

This week in transparency news: May 18 – May 24, 2019

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Federal Commission for Protection Against Sanitary Risk (COFEPRIS) mexico trialassure clinical trial registration disclosure registry support services help assistance expert technology pharmatech medtech trialassure

REGISTRY SNAPSHOT: Federal Commission for Protection Against Sanitary Risk (COFEPRIS)

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This week in transparency news: May 11 – May 17, 2019

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National Institute of Pharmacy and Nutrition (OGYEI) budapest hungary trialassure

REGISTRY SNAPSHOT: National Institute of Pharmacy and Nutrition (OGYEI)

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lay summaries pls plain language summary trialassure

This Week in Transparency News: May 4 – May 10, 2019

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The Italian Medicines Agency (AIFA)

REGISTRY SNAPSHOT: The Italian Medicines Agency (AIFA)

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trialassure clinical trial transparency news

This week in transparency news: April 27 – May 3, 2019

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National Medical Research Register

REGISTRY SNAPSHOT: National Medical Research Register

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